The Problem:
Families of young children with disabilities often hear negative messages about disability and may not know about inclusive community opportunities. Without access to positive information and support, families can feel isolated and may not expect full inclusion for their children. Families need accurate information, encouragement, and peer support to help them advocate for inclusive opportunities and high expectations for their child’s future.
Action:
The Pennsylvania Developmental Disabilities Council (PADDC) funded the Lehigh Valley Center for Independent Living (LVCIL) to implement the Community Inclusion for Young Children (CIFYC) project. The project created a monthly virtual peer support group where parents could connect, share experiences, and learn from one another. Sessions provided practical strategies, information about community resources, and guidance on promoting inclusion and self-determination. Families also had opportunities to connect with outside resources and build supportive relationships with other caregivers.
Results:
More than 127 families have participated in the sessions, with a 92% satisfaction rate. Several families have attended multiple sessions and helped recruit other families through peer connections. Some families also received individualized support to meet their specific needs when group participation was overwhelming. For example, one family received help arranging a Transportation Security Administration (TSA) practice experience at a local airport so their child could become more comfortable with travel.
Unique Role of the Council:
PADDC listens to the needs of people with intellectual and developmental disabilities and their families. The Council uses its network, partnerships, and resources to support projects that help families access information, build community connections, and promote inclusion.