The Problem:
Many families of children with disabilities say that improving services alone is not enough—they also need connection and support from other families. Many feel isolated and lack a “village” to rely on. Research shows that peer support helps families feel more confident and capable, while social isolation can lead to higher health and social costs. Indiana needed a sustainable way to reduce isolation and build stronger family networks.
Action:
The Indiana Developmental Disabilities Council partnered with Aligned Consulting Collaborative to pilot the Connected Families Community Development Model, which focuses on building locally led family networks. Through this effort, four community-based family networks were created and supported. These networks connect families with each other, provide peer support, and help families build stronger relationships within their communities. The Council also helped launch the Indiana Consortium to strengthen collaboration and expand the reach of these networks.
Results:
Since launching in May 2025, the family networks and Indiana Consortium have connected and supported more than 430 families and built partnerships with over 70 community organizations. Families report feeling less isolated, finding more support for their children, and gaining confidence to advocate for their needs. Communities are also responding. For example, one mayor created a local accessibility task force, and a movie theater began offering sensory kits to make visits more inclusive.
Unique Role of the Council:
The Council ensured the work was shaped by families and led by families. It also helped embed the values of the Developmental Disabilities Act—community inclusion, independence, and self-determination—throughout the initiative.