The Problem:
People with developmental disabilities often have a harder time getting the health care they need. They may face communication barriers, inaccessible offices, or health care providers who do not understand their needs. Many people do not receive enough support to speak up for themselves during medical appointments or make informed decisions about their health. This can lead to poorer health and less independence.
Action:
The Council offers Taking Care of Your Health, a training program led by self-advocates who have lived experience. Staff with lived experience also help support the program. The training is being offered across the state through both online and in-person sessions. Participants learn how to prepare for medical appointments, communicate with doctors and other providers, understand their rights, and make healthy choices. Trainers use plain-language materials, role-playing activities, and real-life examples to make learning easier and more practical.
Results:
Thirty-one participants said they felt more confident speaking up during medical appointments, understanding their rights, and making healthy choices in their daily lives. Peer trainers improved their teaching and leadership skills. Families and professionals reported that participants communicated more effectively and showed greater independence.
Why the Council Is Important:
The Council is uniquely positioned to reach people across the state and support self-advocate leadership. By investing in peer-led training and accessible education, the Council helps people with developmental disabilities gain the knowledge and confidence they need to advocate for their own health and well-being.