Challenge
Individuals with intellectual and developmental disabilities (I/DD) and their families need clear, reliable information to understand available services and supports. In Oregon, more than 1,400 individuals receiving developmental disability services identify Spanish as their primary language. Community members and family leaders reported that information about programs, supports, and community resources was often difficult to locate in Spanish, creating challenges for individuals and families seeking to navigate service systems and make informed decisions.
Action
The Oregon Council on Developmental Disabilities (OCDD) partnered with the Spanish-Speaking Family Leaders Advisory Group (SFLAG) to develop a statewide Spanish-language resource guide. In 2025, OCDD contracted with a community-based translation organization to compile, organize, and translate resource information from all 36 Oregon counties. The guide provides information on public programs, health and behavioral health services, education, respite services, community organizations, support groups, and other resources relevant to individuals with I/DD and their families.
Results
OCDD conducted a statewide outreach effort to increase awareness and use of the guide. Distribution channels included community events, professional networks, social media, self-advocacy organizations, case management agencies, and service providers. SFLAG members also shared the guide through Spanish-language communication channels and responded to questions from community members. Since its launch, the guide has received more than 20,000 views, expanding access to information and helping Spanish-speaking individuals and families identify available services, supports, and community resources.
Unique Role of the Council
The Council convened self-advocates, families, community leaders, and service systems to identify information needs and develop a practical resource for Oregon communities. By coordinating partners across sectors and supporting the development of a centralized information hub, the Council helped raise awareness of available services and supports, enabling individuals with I/DD and their families to make informed choices and engage more effectively with community resources.