The Problem
In Colorado, 71% of people with intellectual and developmental disabilities (I/DD) live with family caregivers. Many of these caregivers are aging—21% are over age 60 and 35% are ages 41–59—raising urgent concerns about long-term planning and stability. Without clear succession plans, individuals with I/DD face increased risk of disrupted services, financial insecurity, and limited opportunities to live independently when caregivers can no longer provide support.
Action
The Council funded the Succession Planning Project to help families prepare for the future through structured guidance, tools, and legal direction. The program provides a comprehensive and compassionate process that helps families develop personalized succession plans alongside the person with I/DD. Through facilitated planning, families receive support to address guardianship, financial planning, housing, and long-term support needs—ensuring continuity of care and stability. Due to strong demand and early success, the Council funded a second cohort in FY25 to expand access to this critical planning support.
Results
The project generated strong statewide engagement, with 111 interest form submissions. During FY24, 35 individuals with I/DD and their families completed full succession plans, with 17 additional plans in progress by September 30, 2025—exceeding the original goal of 50 total participants. Thirty-two families remained in the referral queue, demonstrating sustained demand for the program. Participants reported high satisfaction, increased knowledge, stronger inclusion of self-advocate voices, and greater confidence in planning for the future.
What Made the Council’s Role Unique
The Council’s leadership brought together families, self-advocates, and planning experts to create accessible tools and guidance that empower families to secure long-term stability and quality of life for people with I/DD.