NJ Well Being, Individual Rights and Safety (2)

The Problem
A major news investigation, Hidden at Home, confirmed what families have reported for years—people with intellectual and developmental disabilities (IDD) in New Jersey are at risk of harm due to gaps in community-based services. These safety failures have led to abuse, neglect, and preventable deaths. Families and caregivers want a system that keeps people safe, healthy, and respected.

Action
The New Jersey Council on Developmental Disabilities (NJCDD), Regional Family Support Planning Councils, and the Ombudsman partnered to take action. In June 2025, they hosted a statewide virtual listening session to hear directly from families, self-advocates, and providers. Using this input, they developed a Community Blueprint for Safe, High-Quality Licensed Residences outlining needed reforms and clear roles. Stakeholders provided additional feedback in September. In November, the blueprint was shared with the Governor-Elect. Seven workgroups will launch in 2026 to move solutions forward.

Results
Ninety-four people attended the June session, sharing real experiences that shaped the blueprint. Another 110 stakeholders helped refine it in September. Momentum continues to grow—65 individuals have already committed to the abuse and neglect investigation workgroup, showing strong engagement and urgency for change.

Unique Role of the Council
NJCDD is a trusted leader with a strong history of advancing safety for people with IDD. The Council brings together self-advocates, families, and system partners to drive solutions grounded in real experiences and focused on ending abuse and neglect.